Ruxolitinib: A controversial new drug for non-segmental Vitiligo

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Awaiting development by NICE - expected release date 28 February 2024

Joti Gata-Aura, appearing alongside Shankar Jalota, discussing Ruxolitinib, a new NHS treatment for Vitiligo

This month has seen a breakthrough in treatment for Vitiligo, bringing it to the forefront of the media. A cream known as Ruxolitinib (brand name Opzelura) may be offered on the NHS to those aged 12 and over, if approved by the National Institute for Health and Care Excellence.

Ground-breaking new treatment for vitiligo

Having non-segmental vitiligo myself, the most common type where patches or blotches of depigmentation appear on both sides of the body, and as a campaigner and spokesperson for the condition, I was invited to share my perspective on BBC Breakfast, BBC Sunday Morning Live and for an article for BBC News earlier this month.

 
 

Over the years I have researched and spoken to people around the world about treatments they've used to help reverse pigment loss in their skin. Some have had success with nutrition, while others have benefited from UV light therapy offered by the NHS.

Quick fixes for vitiligo don’t always address the underlying issue

With the news of this new treatment, it's important to note that while there's evidence that it can reverse pigment loss, Vitiligo is an autoimmune condition with potential side effects or long-term effects to consider.

Many people seek rapid results, as I once did when searching for a treatment having developed vitiligo at 21, but it's important to research thoroughly by speaking with medical professionals, including Dermatologists and The Vitiligo Society, before starting any treatment.

Highlighting the psychological impact of vitiligo

Vitiligo, which affects only 1-2% of the world's population, has not been a top priority in the medical field as it's considered non-life threatening. However, as highlighted in my interviews on the BBC, the condition can have a significant psychological impact, damaging self-esteem and even stripping away a person's identity.

So, while some (like me now) may embrace their skin, others may be keen to seek a ’quick fix’ to reverse pigment loss. The new treatment offers hope and the choice for those suffering from vitiligo to decide whether it's the right option for them, but remember, this won’t address the underlying issue, so it's essential to take the time to explore all options.

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